Frustration or disappointment?

It all started with a visit to the doctor for problems I thought were caused by back pain. After being on a table for some 20 minutes hooked up to traction on low back, I got up but could hardly walk, speach was messed up where I stuttered to the point of hardly being able to talk and had ringing in left ear that has never gone away.

With these results I was out of work for a period but eventually went back and started a series of doctor/specialist appointment with "experte" in the different areas of expertise including, nose ear and throat, neuralogists, psycologists, and the like, all of which told me there was nothing wrong with me,"it was all in my head". At this point I decided I could live without the constant criticism of these "professionals". I was able to continue working for a while by seeing a chiropractor on a weekly bases but eventually was told by the in house doctor I couldn't work as I was a danger, not only to myself but to my co-workers.

Skipping forward some 18 years, my son, who thought his daughter was slow learning to walk started looking for cause got DNA testing and was found to be a carrier of the FA gene.

That being the case plus one of my sister's having been diagnosed with FA (Friedrichs Ataxia) prompted me to get DNA test which confirmed my belief that I had FA.

It's been a long slow journey of uncertainty, decreased mobilty with a few falls that caused broken bones.

I know, all this can not help anybody but might shed some light on how "professionals" view themselves as having all the answers but don't have the knowledge to say, I don't know what your problem is but I will try to understand that there is a problem.